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Dystocia

Ethan's current differential:

cerebral palsy caused by asphyxia during dystocia.

I think the mystery of Ethan's disability is finally coming to a close however painful it may be.

Also gathering up information to take to a lawyer.

We see a CP specialist on November 12.

I haven't slept in 2 weeks. last night I cried it out on the phone with his father. I told the dance company that I am going on hiatus likely for at least a year.

Recalling the horror of my birth story now with added bonus that my baby did not come out of that healthy makes me sick to my stomach. Especially because I have always felt my birth was extremely mismanaged.

Doctors have also been chasing down the wrong path for years. I do feel that this Dx is starting to explain some things that I had always just waived off as behavioral. I do hope with a correct diagnosis Ethan can start getting the correct help that he needs to live out the rest of his life. At the end of the day, he is the one that has to cope with his disability.

It hurts inside. A lot. I am having a hard time relating to anyone and feel very alone. I have a feeling that 2013 will be the hardest year of my life.

Comments

( 6 comments — Leave a comment )
my_window_seat
Nov. 1st, 2012 04:40 am (UTC)
I'm sorry. We only know each other basically in passing, but I do feel for you.

At least knowledge is power. Now, not without a fuckton of struggle, frustration, exhaustion, other words ending in "tion" -
now you can start moving toward the next phase.

The good one. The one where you both have the opportunity to learn what Ethan needs to keep being the awesome kid he is already, and becoming the awesome larger version of what he is now.

Will be keeping Ethan and you in my thoughts.

Edited at 2012-11-01 04:40 am (UTC)
zevhonith
Nov. 1st, 2012 04:26 pm (UTC)
Pretty much all of this. It will undoubtedly be hard, but you will also find that you have tools now to start managing what's happening. And Ethan's got a great support system to help him on his way. So, I hope, do you. :)
wyrdling
Nov. 1st, 2012 05:34 pm (UTC)
i am sorry. i hope those above are right, and that this provides, at least, more effective tools for you to help your son. he's an awesome kid.

good luck
ingenuelle
Nov. 3rd, 2012 05:10 am (UTC)
*hugs* I'm sorry you guys are going through this. I'm here if you ever need to talk or vent or anything. Ethan is fortunate to have such a strong support system.
brightsoul
Nov. 3rd, 2012 05:32 am (UTC)
wow. this has been years and years of questions and worries and i cannot even imagine what it must feel like to possibly be down the path of possibly right, but hard, truths. big hugs, babe!
goodsnail
Nov. 5th, 2012 12:23 am (UTC)
*hugs* I'm so sorry that you all are going through this. I am grateful you have found Drs that seem to be helpful and knowledgeable. Ethan is lucky in that he has you for his Mom. More *hugs*.
( 6 comments — Leave a comment )

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