?

Log in

No account? Create an account

Previous Entry | Next Entry

Coalitions.

I will probably never forget this moment that happened on Sunday.

Ethan was writing a paper for school and sitting in the kitchen. He had been working diligently for about an hour. He looked up at me and said, "Mom, how come I can't move my wrist?"

I looked down at him and said, "Honey, what do you mean?"

He held up his hand and sure enough he has no flexion in his wrist. He has more in his left wrist, maybe 45 degrees but it still isn't full flexion.

I didn't sleep well last night. I woke up and spent my work day taking calls on breaks and lunch trying to figure out where to take him.

We went though this over 4 years ago and it was a nightmare. Never in my life have I been so stressed out as during the time that no doctor could diagnose my son. As I called around, orthopaedics refused to see Ethan and said the only place for pediatric orthopaedics is at Carrie Tingly. He had seen many doctors at that hospital and I felt that during round one, the "best doctor" they had left me with, "I don't know what is wrong with your son." She seemed to have given up. We did eventually find a podiatrist that would work with us and while x-rays and MRI were inconclusive, managed Ethan has though he had a diagnosis of a rare genetic disorder called tarsal coalition.

We do have an appointment Friday at Carrie Tingly to now see a hand specialist. Dr Kim, at my job suggested that I have him see a geneticist. I got an appointment for him to be seen in February. I told my story to the receptionist at Carrie Tingly, who actually seemed to care and we are apparently seeing a different doctor who is also apparently, "the best". She is only available on Friday mornings, which makes me hope she is from out of town which may be in our favor and may actually make her one of the best.

I am trying to remain calm as I felt on the verge of a panic attack recollecting the stress involved years ago.

I seriously cannot believe this is happening again. I would trade anything and everything to have an able bodied healthy son. Nothing is more painful or stressful than having a child who is not in good health and in pain.

Tags:

Comments

( 4 comments — Leave a comment )
zevhonith
Oct. 23rd, 2012 03:55 pm (UTC)
Oh, what a nightmare. :( I hope that this time around they can figure out what's going on with him.
pandora_blue
Oct. 23rd, 2012 04:58 pm (UTC)
*HUGS*
wyrdling
Oct. 23rd, 2012 08:12 pm (UTC)
how awful! i hope he finds the care he needs, and soon.
goodsnail
Nov. 5th, 2012 12:25 am (UTC)
What a scary moment. Big *hugs* to you both.
( 4 comments — Leave a comment )

Profile

I'm a model!
eclypsia
Rebel Girl

Latest Month

March 2015
S M T W T F S
1234567
891011121314
15161718192021
22232425262728
293031    

Tags

Powered by LiveJournal.com
Designed by Lilia Ahner